Raising awareness of Hidradenitis Suppurativa is imperative. Did you know that Hidradenitis Suppurativa affects at least 1-4% of the population? And, that it takes on average 7 years to get diagnosed? Why? Because even though it is not a rare disease, many people including doctors and nurses still haven’t heard of it. This is a huge problem. 1. Because patients aren’t recognising the symptoms and therefore are not seeking treatment and 2. because when they finally do seek treatment it can take up to 5 doctors and 17 appointments before they find a doctor who recognises the symptoms for what they are: Hidradenitis Suppurativa.
This problem can be fixed by raising awareness. If you want to help others with HS but don’t know how don’t fret. We have compiled a list of things you can do to help us raise awareness. All of which are free and will only take a minute.
1. Share our ‘What is Hidradenitis Suppurativa’ video
We created a short animation video that covers all the basics of what Hidradenitis Supprativa is. The animation outlines what the symptoms and most commonly affected areas are, the 3 stages of HS as defined by the Hurley system and tips on how to manage living with HS. At the end of the video, there are also details on our private HS support group on Facebook.
2. Follow us on social media…
…and invite your friends to follow your lead. Sharing any of our social media posts will help us to raise awareness of Hidradenitis Suppurativa and build our community.
3. Share our support community with a friend
You never know who could use some additional support. HidraWear has a private Facebook Group for HS patients. The community is great for meeting other HS patients and for sharing coping tips and information about Hidradenitis Suppurativa. It is a safe place to talk to other people who know what it is like to live with HS.
4. Share our diagnoses infographic
These two questions may lead to a faster diagnosis. Faster diagnosis is key to managing HS. Share this infographic in the hopes that someone will be able to recognise the signs and get help sooner.
Thanks for your help in raising awareness of Hidradenitis Suppurativa.